Events

The 22nd Annual Canavan Charity Ball

The 22nd Annual Canavan Charity Ball will be held on Saturday October 17, 2020 from 6:30 pm -12:00 am at the Marriott Hotel  Schaumburg, IL. This year we are having a Halloween/Black and Orange theme. Guests are invited to wear costumes, black, orange or basically anything else you feel comfortable in! We are switching to family style dinners to offer a larger variety of food to our guests. There will be a breakfast for our families on Sunday morning. Tickets to both the dinner and breakfast are free for affected families.

Tickets (credit card fee included) are $53.00 per adult - $21.00 per child (children under 4 are free). You can pay online using any of the secure links below. Please be certain to notate how many adult and children's plates you are paying for. If you are planning to stay at the hotel, we have a $99.00 group rate. Book online at Marriott Reservations Canavan Gala or call Reservations at 800-833-2194.


The 21st Annual Canavan Charity Ball

 

Pictured above: Canavan families at the  21st Annual Canavan Charity Ball which was held on Saturday October 19, 2019 at the Marriott Schaumburg Hotel. Ten Canavan families (pictured above) traveled to attend this amazing event and all were able to meet with representatives from ASPA who shared that they are on schedule for a treatment trial in 2020 and that families will not be asked to pay for this gene therapy! So much amazing news for our community. Also joining us for a wonderful evening were representatives from National Tay Sachs and the Canavan Foundation.

 For photo's and details of this wonderful evening please visit our Facebook page.