Events

The 22nd Annual Canavan Charity Ball

We look forward to more children and families attending the 22nd Annual Canavan Charity Ball to be held at the Marriott in Schaumburg on Saturday October 17, 2020. More information will be provided this Spring. There is no charge for tickets to the event for affected families.

Tickets (credit card fee included) are $53.00 per adult - $21.00 per child (children under 4 are free). Please be certain to notate how many adult and children's plates you are paying for. If you are planning to stay at the hotel, book your group rate by calling 847-240-3118. For phone reservations please call 1-800-833-2194.


The 21st Annual Canavan Charity Ball

 

Pictured above: Canavan families at the  21st Annual Canavan Charity Ball which was held on Saturday October 19, 2019 at the Marriott Schaumburg Hotel. Ten Canavan families (pictured above) traveled to attend this amazing event and all were able to meet with representatives from ASPA who shared that they are on schedule for a treatment trial in 2020 and that families will not be asked to pay for this gene therapy! So much amazing news for our community. Also joining us for a wonderful evening were representatives from National Tay Sachs and the Canavan Foundation.

 For photo's and details of this wonderful evening please visit our Facebook page.