Mother's Poems

Maxie’s Fight

It’s always there, lurking and waiting 

The relentless, faceless enemy we run from everyday 

We fight as best we can, and make progress, you are doing so well! 

We get to a point of acceptance, and go on with our daily lives 

The fight becomes our focus, our mission, and just another part of our day 

We feel genuine happiness, and a sense of accomplishment 

This is our reality, this is what we do 

But how long will it last? How long can we keep It at bay? 

Life goes on; there are the usual ups downs, joys and sorrows 

But the terror of the unspoken is always there, lurking and waiting 

We do not accept that one day you will be ripped away from us 

How could we? It doesn’t even seem possible when we see how far you’ve come 

So our denial keeps us going, it feeds our fury to save you 

We believe there is still more hope, we know it is true 

We put our hope in science 

We will not let you go; somehow, someway we will conquer this vicious disease 

We have come so far but have years of hard work ahead  

Our goal is to find a cure, to conquer our enemy, to save you 

I cannot let you go, I will never give up 

I nuzzle your sweet neck, smell your hair, and kiss your face 

Everyday I memorize the details of how you look 

I take so many pictures…just in case It should decide to creep out of the shadows 

That is a fear so real and devastating I rarely allow myself to think about it 

Time is a hard concept, it is wonderful to have but it’s fleeting nature is scary 

You are my strength, my inspiration, my beautiful, loving little Max 

We are a team; I need you to keep going, to remind we what is important 

And to you I give my strength, my love, my devotion 

We will do it together; I know it can be done  

For Max