In The News
Ilyce and Max Randell have represented our battle to save the
children battling Canavan disease on national shows including:
Dateline NBC, Leeza, Montel, NBC, FOX, ABC, WGN CBS News
and Live with Regis and Kelly. We have won the 'Make A
Difference Day' Award as well as the National Diet Rite Cola
Zero Boundaries Award for our dedication to the children
battling Canavan disease.
mission has also been featured in the Philadelphia Inquirer,
Washington Post, the Chicago Tribune, Pioneer Press, CJN, Daily Herald,
JUF, as well as newspapers worldwide.
12, Max continues to make appearances helping to raise awareness of
Canavan disease and the desperate need for funding to support life
saving medical research.
Proclaimed 'Canavan Disease Awareness Month'
Canavan Disease Fast Tracked
By Social Security - Added to List of 'Compassionate Allowances'
IIyce Randell, President of CRI, with Ralph Regula, Chairman,
House Appropriations Labor-HHS-Education Subcommittee.
Max and Ilyce with NY Senator Hillary Rodham Clinton, an advocate of
curing Canavan disease
Comptroller Daniel Hynes's letter of appreciation
Click to read:
Letter of support from IL Senator Richard (Dick)
Click to read:
Ilyce's testimony before the
NIL, HHS, NICHHD.
Click to read:
Ilyce Randell delivers Patient Petition to HHS signed by 13,000 chronically ill, and
80 Nobel winners
Supporting Stem Cell Funding".
Click to read:
Ilyce's article summarizing the NIH meeting.
Max Randell was not expected to survive his first 2
years. Today he is on the brink of adolescence, thanks to gene
Buffalo Grove Boy (Alex Randell) advocates
Older Brother (Max Randell)
(Daily Herald) -
May 26, 2013
Profoundly disabled teenager Max
Randell never has been able to write or utter a single word. But his
little brother, Alex, says the 15-year-old communicates with loved
ones through blinking, eye rolls, smiles and his infectious laugh.
Dinner to Benefit
Research into Disease
(Daily Herald) - October 11, 2007
Everything is a challenge for Buffalo Grove resident Ilyce Randell and her family, but the latest
challenge could double donations to Canavan Research Illinois...
Family's Fight Helps Son, Others (Pioneer
Press) - October 4, 2007
Max Randell, 9, of Buffalo Grove has Canavan disease, but
his family believes he is just as normal as any kid his age.
Up There With Spidey
Magazine) - July 1, 2007
Spider-Man and M.J. may be summer's crime-fighting supercouple,
but Ilyce Randell and her mother, Peggy Shapiro-Nyeholt, are the
dynamic duo striking a blow against Canavan disease...
Woman's devotion challenges Canavan disease
(Daily Herald) - June 5, 2007
Even though life is already chock full of challenges for Buffalo
Grove resident Ilyce Randell and her family, they found one they
Scoopers’ to dish up
treats for charities (Daily Herald) - May 25, 2007
Dueling guest “scoopers” will
pit their fundraising technique against each other in “Scoops for
Charities” this weekend at The Continental Restaurant, 788 S.
Buffalo Grove Road, Buffalo Grove.
Ilyce Randell -
Efforts to the Max (Chicago Jewish News) 2006
Ilyce is voted one of top ten Jewish Chicagoans of the year
Saturday's gala charity ball helps fight
Canavan disease (Daily Herald) - October 20, 2006
For families with children who have Canavan disease, the
recent proclamation by Gov. Rod Blagojevich making October
Canavan Disease Awareness Month came at a perfect time.
Canavan Revisited... (Chicago Jewish News)
October 6, 2006
Due to the hard work of Ilyce Randell, director of
Canavan Research Illinois, and her mother, Peggy Shapiro-Nyeholt,
vice president of the same organization, October has been proclaimed
as Canavan Disease Awareness Month.
Mother, Daughter prove popular in online
contest (Pioneer Press) July 6, 2006
Peggy Shapiro-Nyeholt said that as a child, her daughter Ilyce Randell loved the book The Little Engine That Could.
Buffalo Grove women to donate contest win of
$50,000 to charity (Daily Herald) June 2, 2006
It's not every day that you get a check for $25,000. Even
more unusual - your mother gets one too. But, Ilyce Randell of
Buffalo Grove and her mother, Peggy Shapiro-Nyeholt of Des Plaines,
won't be keeping the money.
A Buffalo Grove Woman's
efforts worth $50,000 (Daily Herald) April 8,
A Buffalo Grove woman who is the driving force behind a
not-for-profit agency working to end neuro-degenerative disorders is
a finalist in a nationwide contest that could net her charity up to
Efforts to the Max (Chicago Jewish News) June 2, 2006
If You're looking for someone who exemplifies the adage that
one person can change the world, Ilyce Randell is your woman.
Benefit salutes those working to find cure for rare Canavan
disease (Daily Herald) October 28, 2005
Rarely do a dozen kids, some of them charity beneficiaries,
attend fundraising balls. But, Canavan Research of Illinois has never
let norms stand in its way.
Technique used on Max may impact millions (Daily Herald) October
and some type of brain tumors and spinal disorders.
Have Cake and Help Others too
(Daily Herald) May 4, 2005
Help Canavan Research by ordering desserts at the Continental Restaurant.
Wilmette resident Clint Krislov
Nov. 25, 2004
honored as the recipient of the Canavan Research Illinois Humanitarian
Award for his advocacy on behalf of the children battling Canavan
Triathlon effort dedicated to ill child
(Daily Herald) July 16, 2004
On Sept. 11, one man will swim, bike and run for a Buffalo Grove
6-year-old who can do none of those activities.
Crusading for a cure (Daily Herald) April 12, 2004
- "Ilyce Randell chosen by the Daily Herald as
this year's local Make A Difference Day winner"
A Buffalo Grove mom set out to save her son, raising awareness
and a half-million dollars in the battle against Canavan disease.
Ilyce Randell could have followed the doctor's advise to put 5-month-old
Max in nursing home and allow the rare genetic disorder known as Canavan
disease to slowly claim his life.
Click to view award
Gene Therapy offers Max Randell & family hope
(Philadelphia Inquirer) July 6, 2001
Max Randell - New
genes provide hope to Palatine boy
Jefferson, experiments into a fatal disorder may have broad
implications. Ilyce and Michael Randell trade off holding and
comforting their only child, Max, 3˝, as they sit on a bed at Thomas
Jefferson University Hospital. They carefully support his shaved head,
freshly scarred from a highly experimental gene-therapy treatment he
had two days earlier - a treatment they hope will slow the relentless
progression of his fatal disorder...
(Daily Herald) July
days after undergoing a groundbreaking experimental gene transplant, 3˝
year-old Max Randell was cradled in his mother's arms on the
floor of their Palatine condo, listening to her croon a little song...
Randell - Battle Over Gene Therapy Puts Hopes on Hold
(Washington Post) March 7, 2000
Like most 2-year-olds,
Max Randell is a bundle of exuberance, gaining new mastery over the
world with every passing day. But unlike most children his age, Max
has just about reached the prime of his life...
Patient Petition Supporting Stem Cell
Funding Presented to HHS Policy Czar ... was presented by Ilyce
Randell, a Canavan's Disease advocate - (Scientific Release) - May