In The News

Canavan Revisited... (Chicago Jewish News) October 6, 2006
Due to the hard work of Ilyce Randell, director of Canavan Research Illinois, and her mother, Peggy Shapiro-Nyeholt, vice president of the same organization, October has been proclaimed as Canavan Disease Awareness Month.

Mother, Daughter prove popular in online contest (Pioneer Press) July 6, 2006
Peggy Shapiro-Nyeholt said that as a child, her daughter Ilyce Randell loved the book The Little Engine That Could.

Buffalo Grove women to donate contest win of $50,000 to charity (Daily Herald) June 2, 2006
It's not every day that you get a check for $25,000. Even more unusual - your mother gets one too. But, Ilyce Randell of Buffalo Grove and her mother, Peggy Shapiro-Nyeholt of Des Plaines, won't be keeping the money.

A Buffalo Grove Woman's efforts worth $50,000 (Daily Herald) April 8, 2006
A Buffalo Grove woman who is the driving force behind a not-for-profit agency working to end neuro-degenerative disorders is a finalist in a nationwide contest that could net her charity up to $50,000.

Efforts to the Max (Chicago Jewish News) June 2, 2006
If You're looking for someone who exemplifies the adage that one person can change the world, Ilyce Randell is your woman.

Benefit salutes those working to find cure for rare Canavan disease (Daily Herald) October 28, 2005
Rarely do a dozen kids, some of them charity beneficiaries, attend fundraising balls. But, Canavan Research of Illinois has never let norms stand in its way.

Technique used on Max may impact millions (Daily Herald) October 22, 2004
epilepsy, Parkinson's and some type of brain tumors and spinal disorders.

Have Cake and Help Others too (Daily Herald) May 4, 2005
Help Canavan Research by ordering desserts at the Continental Restaurant.
 

Wilmette resident Clint Krislov (Pioneer Press) Nov. 25, 2004
was recently honored as the recipient of the Canavan Research Illinois Humanitarian Award for his advocacy on behalf of the children battling Canavan disease.

Triathlon effort dedicated to ill child (Daily Herald) July 16, 2004
On Sept. 11, one man will swim, bike and run for a Buffalo Grove 6-year-old who can do none of those activities.

Crusading for a cure (Daily Herald) April 12, 2004 - "Ilyce Randell chosen by the Daily Herald as this year's local Make A Difference Day winner" 
A Buffalo Grove mom set out to save her son, raising awareness and a half-million dollars in the battle against Canavan disease. Ilyce Randell could have followed the doctor's advise to put 5-month-old Max in nursing home and allow the rare genetic disorder known as Canavan disease to slowly claim his life.
Click to view award          

Canavan Gene Therapy offers Max Randell & family hope (Philadelphia Inquirer) July 6, 2001
At Jefferson, experiments into a fatal disorder may have broad implications. Ilyce and Michael Randell trade off holding and comforting their only child, Max, 3½, as they sit on a bed at Thomas Jefferson University Hospital. They carefully support his shaved head, freshly scarred from a highly experimental gene-therapy treatment he had two days earlier - a treatment they hope will slow the relentless progression of his fatal disorder...

Max Randell - New genes provide hope to Palatine boy
 (Daily Herald) July 5, 2001
Only days after undergoing a groundbreaking experimental gene transplant, 3½ year-old Max Randell was cradled in his mother's arms on the floor of their Palatine condo, listening to her croon a little song...

Max Randell - Battle Over Gene Therapy Puts Hopes on Hold 
(Washington Post) March 7, 2000
Like most 2-year-olds, Max Randell is a bundle of exuberance, gaining new mastery over the world with every passing day. But unlike most children his age, Max has just about reached the prime of his life...