Canavan Research Illinois

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On March 6th 1998, we were given the news that no parent ever wants to hear... our son, Max Randell, was diagnosed with Canavan disease." Our beautiful 4½ month old baby boy was dying of Canavan disease, a degenerative brain disease for which there was no cure or treatment. At that point we decided to fight for our dear little Max and all the other children with Canavan disease.

We soon learned that there was one chance in the world for our son... experimental research pioneered by parents determined to keep their children and hope alive. In the hopes that no parent would ever have to hear those words again, our family founded Canavan Research Illinois, an all volunteer 501(c)(3) public charity dedicated to raise funds to support medical research, increase public awareness, and network Canavan families.

As a direct result of the cutting edge medical research we support, many of the children battling Canavan have had dramatic improvements in vision and their quality of lives. Because of our dedication - children diagnosed today have therapies available to them that previously did not exist.

Because Canavan serves as a model for other neurological diseases, our advancements can also benefit millions suffering from debilitating neurological diseases such as ALS, Parkinson's, Alzheimer's, Multiple Sclerosis, and stroke.

Max's 8 year old brother Alex (pictured above with Max and Ilyce) is our youngest volunteer. Alex stuffs and stamps envelopes and educates everyone he meets about Canavan Research Illinois and what we are doing to save the brave children battling Canavan who have so few advocates. Alex is dedicated to becoming a research scientist to conquer neuro-degenerative diseases.

Ilyce & Michael Randell, co-founders
Canavan Research Illinois

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