Max Randell

Little Max has represented the battle to save the childhood victims of Canavan disease on Dateline NBC, Leeza, Montel, Philadelphia Inquirer, Live With Regis and Kelly, Washington Post, Daily Herald, CJN, Pioneer Press, and the Chicago Tribune.  Max continues to make appearances helping to raise awareness of Canavan disease and the need for funding to support life saving medical research.

Max made medical history in September 1998 when he became the youngest person in the world to receive experimental gene therapy for a neurodegenerative disease.
*Click here to read: 'Loving My Cousin Max - A Life Changing Experience' by Karen Berman

Max flying home from Philadelphia after his last set of follow up tests, a two-year process, from the second gene transfer surgery.		Max, Celeste Stern and Briana Petrovic (both have Canavan as well) at his 5th Birthday.
Mike, Max, Alex and Ilyce Randell leaving after Max's 6th Birthday party		Former Illinois Congressman Philip Crane has been a friend and advocate since meeting Max three years ago.
Illinois Governor Rod Blagojevich, with Max and Ilyce Randell, at the Governor's historic establishment of the Illinois Regenerative Medicine Institute.		Max with his very special friend Celeste Stern. Celeste is also battling Canavan disease.