Canavan Research Illinois - Precious faces of Canavan disease
Based in Illinois...Dedicated to Curing Canavan Disease

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Canavan Research Illinois - Cure Canavan disease


Canavan Research Illinois
Dedicated To Curing 
Canavan Disease

www.canavanresearch.org

 

Events/Benefits

All donations to Canavan Research Illinois are tax deductible to the full extent of the law


Ongoing - THE CONTINENTAL RESTAURANT - Buffalo Grove
Mention 'Max Randell' or 'Canavan Disease' when you pay your check and 10% of your total will be donated to Canavan Research Illinois.

Future Events: The '12th Annual Charity Ball' (Awareness and Fundraising Event) will be held on Oct. 9th, 2010 at the Deerfield  Hyatt Deerfield Hotel, featuring dinner, dancing, and our incredible super sized silent auction. Children are always welcome. All funds raised will be dedicated to benefit medical research to cure this neurodegenerative disease that affects children. See photo's below of previous events.

Bracelets  - Click here to purchase bracelets


Recent Events:

The 11th Annual Canavan Charity Ball - our major  Awareness and Fundraising Event 

- was held on Oct. 17,  2009 at the Hyatt Deerfield Hotel. This event was truly spectacular  and  everyone had  a wonderful time. See photo of  Max enjoying the evening on the dance floor. Very special thanks to Mary  LaLoggia, of Affordable FloralArt, who donated her gorgeous floral creations, to Mira Zweiban for her donation of hand made delicious candies and incredible baskets, and to all the wonderful merchants who gifted us with such a wide variety of auction items. An especially heartfelt thank you to the generosity of  'Two Men and A Truck' who donated movers to transport a truck filled with auction items to the event. Thanks to their help we were able to raise much needed funds in the battle against Canavan disease.

The month pf October  was once again Proclaimed as 'Canavan Disease Awareness Month'-  by the Governor of Illinois - as well as the Village of Palatine in honor of this event.

The 10th Annual Canavan Charity Ball

was held on Nov. 17, 2008 at the Hyatt Deerfield Hotel. See photo on left of Max enjoying the evening surrounded by our youngest volunteer Rianna Weil and friends. Our next Charity Ball will also be held at the Hyatt on Oct. 17th 2009 - please see full details above.






*Special thanks to the law firm of Katten Muchin Rosenman LLP  for
generously holding a  'Wear Jeans to Work'  fundraising event on August 1, 2008 to benefit Canavan Research Illinois.

 

The 9th Annual Charity Ball - Was held October 13th, 2007 at the Hyatt Deerfield Hotel in honor of the momentous occasion of Max's 10th Birthday.

This event was a huge success... an evening enjoyed by all! The auction items were outstanding, the music incredible, the cake a masterpiece, the table decorations sensational, and our guest speaker was the renowned Dr. Paola Leone Associate Professor in the Dept. of Cell Biology, UMDNJ/SOM. Dr. Leone (featured L. with Max) is the world's leading researcher in Canavan disease and a recognized neuro-researcher in many other areas of biomedical research related to diseases of the brain. Humanitarian awards were presented to Ralph and Lois Silver of the Silver Foundation as well as Rianna Weil, our youngest volunteer.

Our May 2007 "Rocking to the 70's" Bowling Tournament' was a big hit at 10 Pin Lanes in Chicago.

December of 2006 - Canavan Research Illinois was honored to be the recipient of The Signature Room's "Charity of the Month".

The 8th Annual Canavan Charity Ball - Was held Sat. Oct. 21st, 2006, at the beautiful Renaissance Hotel, Northbrook, IL. This exciting event featured dinner, dancing, and a silent auction. We were especially honored this year to have as our guest speaker Robert Kurson. Mr. Kurson is the well known author of 'Shadow Divers', a best selling, inspirational non-fiction novel, that is soon to be released as a feature film.
 

The 7th Annual Canavan Charity Ball - Was held on Sat. Oct. 15th, 2005 at the beautiful Renaissance Hotel, Northbrook, IL. Our honored guest speaker was Illinois Sate Comptroller Daniel Hynes (pictured R.) with Max Randell, Celeste Stern, and Natallya Gausvic with her dad Thyme. 

Humanitarian awards were presented to the Comptroller, Gov. Rod Blagojevich, and several of our 'volunteer angels' who worked so hard to make this evening a huge success. The 'Canavan Research Scientist of the Year Award' was presented to the esteemed Dr. Scott McPhee of the Cell & Gene Therapy Center UMDNJ-Robert Wood Johnson Medical School. Camden N.J.

The 6th Annual Charity Ball, 'Steps Towards the Cure'  was held October 16th. 2004 at the Hyatt Hotel, Deerfield, IL. Our guest speaker, Dr. Andrew Freese  (Pictured L. with charity Vice President Peggy Shapiro-Nyeholt) was the well deserved recipient of our 'Physician Scientist of the Year' award. 

Dr. Freese is the Professor and Vice Chairman of the department of Neurosurgery and Director of Spinal Surgery at the University of Minnesota. Dr. Freese's well received presentation focused on why supporting the battle against Canavan disease will lead to cures for other neurodegenerative diseases and will truly have a major impact on the lives of millions of people. Click for article about Dr. Freese

Max Randell greeted guests with his mother Ilyce, President of Canavan Research Illinois. Max stayed the entire evening and was was very moved to see so many people in attendance. Also at the benefit... attorney Clint Krislov received  the charity's '2004 Humanitarian' award for his dedicated efforts to make a difference in the lives of these precious children who have so few advocates (Mr.& Mrs. Krislov pictured R.). Click for article about Clint Krislov

Attorney Barry Silver (not pictured) was also presented with a Humanitarian award for his dedication to the battle against Canavan disease. Click for article about Barry Silver


TIlyce Randell, presents Dr. Paola Leone with the Scientist of the Year awardhe 5th Annual Charity Ball, hosted by Canavan Research Illinois (CRI), was held October 25th, 2003 at the Hyatt Hotel,  Deerfield, IL. We had a wonderful turnout featuring a delicious dinner, gorgeous decorations, fabulous music, interactive dancers, and spectacular auction items. Ilyce Randell, President of CRI, presented Dr. Paola Leone (pictured L.) with the 'Scientist of the Year' award in recognition of Dr. Leone's achievements in the field of Canavan disease research. These achievements were helped made possible with the support of CRI.

Bunnie Dewar with Max Randell and Celeste Stern A highlight of the evening was when Max Randell surprised everyone by guiding Celeste Stern in a wheelchair dance around the floor. Max, maneuvered his power chair to pull Celeste to the music. Bunnie Dewar, occupational therapist from the Gillet Educational Center, is pictured with the children. 

Ilyce Randell and mom Peggy Shapiro-NyeholtPeggy Shapiro-Nyeholt (CRI Vice President and Max's 'Gammie') pictured with daughter Ilyce, is the chairman of the Auction committee.  This year's auction featured a wide variety of generously donated items  and Hollywood luminaries joined forces with us by donating signed scripts and photographs to help us to raise much needed funds. 

Max Randell and Dr. Paola Leone at the 5th Annual Canavan Charity BallPaola Leone and Max shared a moment together prior to Ilyce and Paola presenting Max with a victory medal for inspiring our fight against Canavan disease. 

*  Photos of The 5th Annual Ball are courtesy of L.W. Larsen Photography. To view more photos of the Canavan Charity Ball, visit  Photo reflect.

The 3rd Annual Canavan Charity Ball was held on Sept. 22nd 2001 at the Watercress Banquets, Palatine, IL. 

Congressman Philip Crane showed his support by serving as  as the Honorary Chairman of this event (pictured L. with wife Arlene, Michael and Ilyce Randell, and Congressman Mark Steven Kirk with wife Kimberly). 

Humanitarian Awards were presented to United States (IL) Congressmen Philip Crane and Mark Steven Kirk, Senators Dick Durbin and Peter Fitzgerald, for working together in a bipartisan effort on behalf of the children battling Canavan disease. Senator Durbin once described Ilyce Randell, in a CBS News interview, as “a profile in courage". Journalist Ruth Gesmer Silverman, was also the recipient of an award for raising awareness of our battle against Canavan disease.

Ilyce and Max Randell with 'Gampa' Jim Nyeholt


'Kids for Canavan Day' was hosted by Dinorex Oct. 2003, Max, pictured with mom Ilyce, and "Gampa" Jim Nyeholt.

 

 


 Bracelet's and Cards:

"Miracles" bracelets
Click here to see the bracelet are accompanied by a statement about the mission of Canavan Research Illinois. They make great gifts and we can ship them anywhere! $10.00 each - available as a regular clasp (size 7) or stretch (sizes 7 or 8). .

* Click to view our gorgeous all purpose greeting cards: $15.00 box of 8 

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To order by phone or email - Contact Ilyce Randell at 800-833-2194 or info@canavanresearch.org

* For secure Credit Card orders-click on the 'Donate Now' box below & note 'Bracelets' (Please specify style & size)  or 'Cards' with your donation.