About Canavan Research
Canavan Research Illinois is a
nonprofit corporation and 501(c)(3) public charity, that was born out
of desperation to save all the children battling Canavan disease. We
are an all volunteer organization, and virtually every penny donated
goes directly to support life saving research.
Based in Illinois (not a chapter of any other
organization) we are devoted to victims of Canavan disease worldwide.
Because Canavan disease is rare and receives negligible public funding,
we rely on private donations and grants to support gene
therapy, pharmacological, and stem cell research offering new hope to
treat and cure Canavan disease.
Because Canavan serves as a model for other neurological
diseases, our advancements can also benefit millions suffering
from debilitating neurological diseases such as ALS, Parkinson's,
Alzheimer's, Multiple Sclerosis, and stroke.
Canavan Research Illinois is exceptionally
responsive to the Canavan families, physicians, and researchers that
contact this charity. We respond instantly and offer both a toll free
telephone number and email contact (see contact us).
Canavan families battling this fatal disease, and provide them with a
Canavan Quality Of Life Guide at no charge. We raise awareness of
Canavan disease, provide information regarding clinical trials and
genetic testing, and are dedicated to funding cutting edge medical
research to treat and cure Canavan disease.
Our determination to save the
children, and the medical research and breakthroughs we support, has
garnered national media attention including: Dateline NBC, Leeza,
Montel, Chicago Tribune, Philadelphia Inquirer, and The Washington
Post as well as a variety of news programs and newspapers worldwide.
Thanks to your help we are making a difference for these precious
children who have so few advocates.