Canavan Research Illinois - Precious faces of Canavan disease
Based in Illinois...Dedicated to Curing Canavan Disease

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Canavan Research Illinois - Cure Canavan disease


Canavan Research Illinois
Dedicated To Curing 
Canavan Disease

www.canavanresearch.org


'Make A Difference Day' Award
 2004 Recipient


Click here to purchase
 'MIRACLE BRACELETS'

and CANAVAN CARDS

 

 

 

Canavan Research Illinois

A Family's Fight for the Cure DVD

 'A Family's Fight For the Cure'

"On March 6th 1998, we were given the news that no parent ever wants to hear... our son, Max Randell, was diagnosed with Canavan disease." Our beautiful 4½ month old baby boy was dying of Canavan disease, a degenerative brain disease for which there was no cure or treatment. At that point we decided to fight for our dear little Max and all the other children with Canavan disease.

We soon learned that there was one chance in the world for our son... experimental research pioneered by parents determined to keep their children and hope alive. In the hopes that no parent would ever have to hear those words again, our family founded Canavan Research Illinois, an all volunteer 501(c)(3) public charity dedicated to raise funds to support medical research, increase public awareness, and network Canavan families.

As a direct result of the cutting edge medical research we support, many of the children battling Canavan have had dramatic improvements in vision and their quality of lives. Because of our dedication - children diagnosed today have therapies available to them that previously did not exist.

Because Canavan serves as a model for other neurological diseases, our advancements can also benefit millions suffering from debilitating neurological diseases such as ALS, Parkinson's, Alzheimer's, Multiple Sclerosis, and stroke.

Ilyce & Michael Randell, co-founders
Canavan Research Illinois

Please help us to reach our  '$10,000 Matching Funds' Challenge

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LICK BELOW  TO DONATE NOW

Your donation is tax deductible to the full extent of the law

 

 

 

In the News: 

Canavan Research Illinois - Max Randell, battling Canavan disease
Max Randell at 2½

Now twelve, Max has represented our battle to save the children on:
................................
Dateline NBC
FOX & ABC News
WGN & CBS News
Regis and Kelly
Leeza/Montel
Washington Post
Daily Herald
Pioneer Press
Chicago Tribune
Philadelphia Inquirer


Awards:

We have received the:
Make A Difference Day
' and the Diet Rite 'Zero Boundaries' Awards for our dedication to these brave children who have so few advocates


Awareness/Benefits

October was once again proclaimed 'Canavan Disease Awareness Month' in honor of the '11th Annual Canavan Charity Ball' held on October 17, 2009

Click here for event photo's