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Canavan Research Illinois - Cure Canavan disease


Canavan Research Illinois
Dedicated To Curing 
Canavan Disease

www.canavanresearch.org



 2004 Recipient'Make A Difference Day' Award


Click here to purchase
 'MIRACLE BRACELETS'

and CANAVAN CARDS

 

 

 

Canavan Research Illinois


As
a voice for all children battling Canavan disease, who have so few advocates,
Ilyce and Max met with Hillary Rodham Clinton an advocate of curing Canavan disease.

On March 6th 1998, we were given the news that no parent ever wants to hear... our son, Max Randell, was diagnosed with Canavan disease." Our beautiful 4 month old baby boy was dying of Canavan disease, a degenerative brain disease for which there was no cure or treatment. At that point we decided to fight for our dear little Max and all the other children with Canavan disease.

We soon learned that there was one chance in the world for our son... experimental research pioneered by parents determined to keep their children and hope alive. In the hopes that no parent would ever have to hear those words again, our family founded Canavan Research Illinois, an all volunteer 501(c)(3) public charity dedicated to raise
funds to support medical research, increase public awareness, and network Canavan families.

As a direct result of the cutting edge medical research we support, many of the children battling Canavan have had dramatic improvements in vision and their quality of lives. Because of our dedication - children diagnosed today have therapies available to them that previously did not exist.

Because Canavan serves as a model for other neurological diseases, our advancements can also benefit millions suffering from debilitating neurological diseases such as ALS, Parkinson's, Alzheimer's, Multiple Sclerosis, and stroke.

Max's 11 year old brother Alex (pictured below with Max and Ilyce) is our youngest volunteer. Alex stuffs and stamps envelopes and educates everyone he meets about Canavan Research Illinois and what we are doing to save the brave children battling Canavan who have so few advocates. Alex is dedicated to becoming a research scientist to conquer neuro-degenerative diseases.His disability prevents him from talking, but Max Randell, center, smiles broadly whenever he cuddles with his mom, Ilyce, and younger brother, Alex.

Alex recently was invited to present to the NIH the critical  need for funding for a potential new trial that promises to  make a difference for children like Max who have so few advocates. His moving presentation  was very well received by Dr. Story Landis, Director of National Institute for Neurological Disorders and Stroke (NINDS), and scientists from NINDS and NIH.  Click here for the Daily Herald article article

Ilyce & Michael Randell, co-founders
Canavan Research Illinois

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Your donation is tax deductible to the full extent of the law

Follow Us on and Facebook and Twitter

https://www.facebook.com/CanavanResearchIllinois 

https://twitter.com/CureCanavan

 

 

 

In the News: 

Canavan Research Illinois - Max Randell, battling Canavan disease
Max Randell at 2

Now fifteen, Max has represented our battle to save the children on:
................................
Dateline NBC
FOX & ABC News
WGN & CBS News
Regis and Kelly
Leeza/Montel
Washington Post
Daily Herald
Pioneer Press
Chicago Tribune
Philadelphia Inquirer


Join Us at the Charity Ball!

The '15th Annual Canavan Charity Ball'
will be  held on

Sat. 10/12/13

Click for invitation


Awards

For our dedication to these brave children,  we have received the following awards:

Make A Difference
 Day Award

Diet Rite Zero/Boundaries Award


Awareness

October proclaimed Canavan Disease Awareness Month
in Illinois

Click to view