Canavan Research Illinois
'17th Annual Canavan Charity Ball'
will be held on OCT. 3 2015 in memory of Isaac Michael Levin
The 17th Annual Canavan
Charity Ball will be held in loving memory of
Isaac Michael Levin.
Little Isaac lost his battle with Canavan disease
on Friday, April
10, 2015 at 2:43 pm. Isaac was only 18 months old when he passed
away. Isaac's parents are dedicated supporters of CRI and the
research we support. We will dedicate the event and all proceeds
towards a research grant
to help honor the memory and fighting
spirit of Isaac.
CLICK HERE FOR INVITATION
(click here to view)
Pay below - $18.00 (shipping included) - $15.00 at the door
Please notate on the form the number of shirts and sizes (SM-XL)
Credit card donations may be made via PayPal
Network For Good
or mail to Canavan Research Illinois, PO Box 5823, Buffalo Grove, IL 60089
Click to make a secure credit card donation
to make a
secure credit card donation
tax deductible to the full extent of the law
6th 1998, we were given the news that no parent ever wants to
hear... our son, Max Randell, was diagnosed with Canavan disease."
Our beautiful 4½ month old baby boy was dying of Canavan disease, a
degenerative brain disease for which there was no cure or treatment.
At that point we decided to fight for our dear little Max and all
the other children with Canavan disease.
We soon learned that there was one chance in the world for our
son... experimental research pioneered by parents determined to keep
their children and hope alive. In the hopes that no parent would
ever have to hear those words again, our family founded Canavan
Research Illinois, an all volunteer 501(c)(3) public charity
dedicated to raise
funds to support medical research, increase
public awareness, and network Canavan families.
As a direct result of the cutting edge medical research we support,
many of the children battling Canavan have had dramatic improvements
in vision and their quality of lives. Because of our dedication -
children diagnosed today have therapies available to them that
previously did not exist.
Because Canavan serves as a model for other neurological diseases,
our advancements can also benefit millions suffering from
debilitating neurological diseases such as ALS, Parkinson's,
Alzheimer's, Multiple Sclerosis, and stroke.
Max's 11 year old brother Alex (pictured below with
Max and Ilyce) is our youngest volunteer. Alex stuffs and stamps
envelopes and educates everyone he meets about Canavan Research
Illinois and what we are doing to save the brave children battling
Canavan who have so few advocates. Alex is dedicated to becoming a
research scientist to conquer neuro-degenerative diseases.
Alex recently was invited to present to the NIH
the critical need for funding for a potential new trial that
promises to make a difference for children like Max who have so few
advocates. His moving presentation was very well received by Dr.
Story Landis, Director of National Institute for Neurological
Disorders and Stroke (NINDS), and scientists from NINDS and NIH. Click
here for the Daily Herald article article
Ilyce & Michael Randell, co-founders
Canavan Research Illinois
October is 'Canavan Disease Awareness Month'
In IL. & CA.
Click for Proclamations Below:
Buffalo Grove -
by Jan and Barry Wolfert - the State of
California has also made this proclamation
click for photo
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In the News:
Max Randell at 2½
Now seventeen, Max has represented
our battle to save the children on:
•FOX & ABC News
•WGN & CBS News
•Regis and Kelly
Join Us at the
The '17th Annual Canavan Charity Ball'
will be held on
For our dedication to these
brave children, we have received the following awards:
•Make A Difference
•Diet Rite Zero/Boundaries Award
proclaimed Canavan Disease Awareness Month
Click to view